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The Intersex Society of North America closed its doors and stopped updating this website in For current information, links to intersex support groups, and to connect with intersex advocates, please head to interACT: Advocates for Intersex Youth. The Intersex Society of North America ISNA is devoted to systemic change to end shame, secrecy , and unwanted genital surgeries for people born with an anatomy that someone decided is not standard for male or female.
Click here to learn more about our agenda. With your help, we can make the world a safer place for families dealing with intersex conditions.
The Intersex Society of North America ISNA was founded in in an effort to advocate for patients and families who felt they had been harmed by their experiences with the health care system. From these scrappy, brave, and confrontational beginnings, ISNA evolved into an important resource for clinicians, parents, and affected individuals who require basic information about disorders of sex development DSDs and for how to improve the health care and overall well-being of people with DSD s.
Here are two recent and striking examples of this shift:. Although it is far from perfect, some of the ground-breaking changes advocated in the Consensus Statement CS include:. But as wonderful and historic as these changes are, no institution has fully implemented them. There are no mechanisms are in place to foster implementation nor to evaluate to what extent these changes improve health care experiences and outcomes for persons and families affected by DSD s.